Another bump in the road…
Soooo, we’re moving along with treatment and WHAM, another hurdle for Morgan to clear…an infection in her lung. We had hoped to treat with meds, but that would keep her in the hospital for several more weeks. Therefore, this afternoon Morgan underwent a lung biopsy and they removed the entire mass. Morgan will be in […]
This just in…
So we received her LP results and her body has been given the all clear. It’s where we want to be. Her heart rate has been quite high, a result of we/doctors think a fungal infection…treating accordingly, but may keep us in a bit longer. Right now we wait for her heart rate to decrease […]
If you build it…
We are off the oxygen mask! Her pneumothorax has reduced enough in size that blowing bubbles and walking around or using a treadmill should be sufficient. Some bakers came today and dropped off a gingerbread house for Morgan to decorate (and mommy to eat anything that falls off the house). She really enjoyed this art […]
Are We There Yet?
Yeah, haven’t been on in a while, and I know that many of you have been waiting for updates on Morgan’s fight. Cause that’s what we are doing…fighting. The experimental chemo is kicking ass, but kicking hers as well. Morgan’s hair is pretty much out now, and this is very upsetting for her. It’s one […]
Let them eat brisket…
So it’s Thanksgiving…and not for nothing, but really not a lover of this holiday – or ever will be again – since this time 2-years ago we were here. Today was a GREAT DAY. Morgan is bored out of her mind, but being her usual trooper self. Our biggest concern over the last couple of […]
Silent night…
So last night was pretty quiet..which is a good thing. We are on the same program as last time with the road map of where we need to be on this second times the charm journey. We are working toward getting Morgan to remission within the next 30 days. The one change in her road […]
Back to School!!!
We’re back, and sooo excited. Today Morgan climbed on the bus to go to her first day back to school, and the start of 4th grade. Not gonna lie, hope that the home schooling has prepared her for 4th grade, but I know she will rise to the challenge. The fact that her bus stop […]
Guess who’s coming to dinner…
Received a call this morning from the the Gift of Life, bone marrow donor program. Morgan is going to have the opportunity to meet her donor and HIS family in New York at a Mets game, then dinner! The organization is going to send us via train to stay overnight and then attend the game […]
Make-A-Wish…Bonjour!
We’re here…and exhausted! Morgan was a trooper on the flight over with very little drama. The Mayfair Hotel is so quaint, and Morgan has already taken two very luxurious baths!! She uses her two mastered words of Bonjour and Merci everyday! We are sweating our tails off over here, as the weather is quite warm. […]
Happy Birthday (again!)
So, we were back at the pool this year for Morgan’s actual birthday! Such a great sunny day. We followed up the day with a movie and sleepover for some of the girls…who stayed up till 2am this morning!!!! What a difference a year makes. Morgan is doing great…I think her wish while blowing out […]