Priceless…

First invoice in since Morgan’s diagnosis, which is for Nov 24 – Dec 29: Room & Board: $95,132 Core Lab: $50,196 (I have no idea what this is) Pharmacy Services: $46,375.07 IV Solutions: $18,527 various other fees for a GRAND TOTAL of $293,641.07 INSURANCE:  PRICELESS With everything going on in today’s economy, and the true unknown […]

Time Warp…

So, huge apologies for not checking in lately.  Technical difficulties with the site that seem to be now fixed!  So last we left off, we were SUPPOSED to be in the hospital another 1 -2 weeks.  Sure enough, true to Morgan form, the next day Morgan went from 0 cells to count to 100 (which […]

Spring Break

Friends is off for Spring Break, but school is still in for us at the hospital.  Morgan’s counts are still “zero”, but her spirits are back to infinity!  The doctors figure we’ll be in the hospital at least another 2 weeks, possibly 3.  Morgan is starting to “take” her shots amazing well.  She called me […]

Bone Marrow Supporter!!!

this was sent to me from a mom at Friends Select, whose husband works for Gamesa.  I do not know how they heard about us, but I am so glad they did – AMAZING! Subject: Gamesa US Supports Bone Marrow Donor Drive No. 09.11 · March 19, 2009 Gamesa US Supports Bone Marrow Donor Drive […]

Bacteria the future…

The last few days have been even less than a picnic than previous weeks.  Morgans counts, as mentioned before, have gone to zero.  Not like the Magic Zero from her school play she missed last week.  Thank you to Teacher Carol for bringing the CD over for us to watch, and watch, and watch…thanks, really, […]

Down for the count…

Morgan’s counts have finally come down.  Now we have to wait for them to come up before we can leave.  This was expected, and what we were waiting to happen.  Morgan will be a little more sleepy and sick for the next day or so.  She’s in “lockdown” until the counts come up, so visits […]

A shot in the dark…

Ok, these GSF shots ( I think that’s what they are called) are to help Morgan get her counts up faster, so that we can leave the hospital.  We started them yesterday.  These are shots that I have to give her daily once we leave the hospital…yeah, we may be staying a little longer. Let’s […]

Amazing Grace (Morgan Grace that is)…

Morgan was amazing at 7am.  She took her eye drops, and rolled over (while I was pretending to sleep) to tell me it was time for her shot (which I did not remind her of the night before).  So, I was pretending to sleep, hoping she would want to stay quiet while she got her […]

Calling all donors…

As we anxiously wait to see if the 5 identified individuals match Morgan, the school she attends, Friends Select, stepped up yet again and organized a Bone Marrow Drive!  We will not know for weeks whether or not the donors found will actually match Morgan.  A drive will allow us the opportunity to add more […]

1, 2, Wii…

           We’ve checked back in, and alas – to the HoJo side of the hospital:(  ANYWAY, great news.  The oncology team has identified FIVE donor matches for Morgan.  These individuals have been “activated”, meaning they have accepted the task of being a donor and are currently undergoing the tests that are […]